Her family had taken her to the doctor, noticing she seemed slightly under the weather. Shortly after her heart "just stopped beating on its own", said mother Samantha Odell.
Tiana's loved ones have been searching for answers since the death and appear to now have them after receiving blood test results back from the United States.
Tiana's parents are now testing their own blood to see where there gene came from.
"In order for her to get the gene, both me and her father must carry it or it was a mutation."
It's believed an infection or cold may have triggered the gene, causing the muscle deterioration.
"We took her to the hospital in the morning around 9am and from there her body just started to give up. In the end, her heart just stopped beating on its own."
Odell has been waiting for months for answers after sending Tiana's blood to a lab in Wisconsin. Now she will continue to wait to find out where the gene originated.
"She was the most easiest baby, she was full of life, always on her feet."
Odell described her daughter as "a lot older for her age".
"She was very on to it ... she was a perfect baby. Healthy as anything, no problems."
Tiana made everyone happy and was the type of child who never stayed still, "always climbing things and running around", said her father, Tulo Kirifi-Petueli.
"She didn't live her whole but lived her life while she had it," he said.
Odell said Tiana lit up the room with her smile and laugh, and used to make friends with random people.
"She was the sort of child that brought everyone together."
Tiana was always dancing, her mother said. Photo / Supplied
