NZ Herald
  • Home
  • Latest news
  • Herald NOW
  • Video
  • New Zealand
  • Sport
  • World
  • Business
  • Entertainment
  • Podcasts
  • Quizzes
  • Opinion
  • Lifestyle
  • Travel
  • Viva
  • Weather

Subscriptions

  • Herald Premium
  • Viva Premium
  • The Listener
  • BusinessDesk

Sections

  • Latest news
  • New Zealand
    • All New Zealand
    • Crime
    • Politics
    • Education
    • Open Justice
    • Scam Update
  • Herald NOW
  • On The Up
  • World
    • All World
    • Australia
    • Asia
    • UK
    • United States
    • Middle East
    • Europe
    • Pacific
  • Business
    • All Business
    • MarketsSharesCurrencyCommoditiesStock TakesCrypto
    • Markets with Madison
    • Media Insider
    • Business analysis
    • Personal financeKiwiSaverInterest ratesTaxInvestment
    • EconomyInflationGDPOfficial cash rateEmployment
    • Small business
    • Business reportsMood of the BoardroomProject AucklandSustainable business and financeCapital markets reportAgribusiness reportInfrastructure reportDynamic business
    • Deloitte Top 200 Awards
    • CompaniesAged CareAgribusinessAirlinesBanking and financeConstructionEnergyFreight and logisticsHealthcareManufacturingMedia and MarketingRetailTelecommunicationsTourism
  • Opinion
    • All Opinion
    • Analysis
    • Editorials
    • Business analysis
    • Premium opinion
    • Letters to the editor
  • Politics
  • Sport
    • All Sport
    • OlympicsParalympics
    • RugbySuper RugbyNPCAll BlacksBlack FernsRugby sevensSchool rugby
    • CricketBlack CapsWhite Ferns
    • Racing
    • NetballSilver Ferns
    • LeagueWarriorsNRL
    • FootballWellington PhoenixAuckland FCAll WhitesFootball FernsEnglish Premier League
    • GolfNZ Open
    • MotorsportFormula 1
    • Boxing
    • UFC
    • BasketballNBABreakersTall BlacksTall Ferns
    • Tennis
    • Cycling
    • Athletics
    • SailingAmerica's CupSailGP
    • Rowing
  • Lifestyle
    • All Lifestyle
    • Viva - Food, fashion & beauty
    • Society Insider
    • Royals
    • Sex & relationships
    • Food & drinkRecipesRecipe collectionsRestaurant reviewsRestaurant bookings
    • Health & wellbeing
    • Fashion & beauty
    • Pets & animals
    • The Selection - Shop the trendsShop fashionShop beautyShop entertainmentShop giftsShop home & living
    • Milford's Investing Place
  • Entertainment
    • All Entertainment
    • TV
    • MoviesMovie reviews
    • MusicMusic reviews
    • BooksBook reviews
    • Culture
    • ReviewsBook reviewsMovie reviewsMusic reviewsRestaurant reviews
  • Travel
    • All Travel
    • News
    • New ZealandNorthlandAucklandWellingtonCanterburyOtago / QueenstownNelson-TasmanBest NZ beaches
    • International travelAustraliaPacific IslandsEuropeUKUSAAfricaAsia
    • Rail holidays
    • Cruise holidays
    • Ski holidays
    • Luxury travel
    • Adventure travel
  • Kāhu Māori news
  • Environment
    • All Environment
    • Our Green Future
  • Talanoa Pacific news
  • Property
    • All Property
    • Property Insider
    • Interest rates tracker
    • Residential property listings
    • Commercial property listings
  • Health
  • Technology
    • All Technology
    • AI
    • Social media
  • Rural
    • All Rural
    • Dairy farming
    • Sheep & beef farming
    • Horticulture
    • Animal health
    • Rural business
    • Rural life
    • Rural technology
    • Opinion
    • Audio & podcasts
  • Weather forecasts
    • All Weather forecasts
    • Kaitaia
    • Whangārei
    • Dargaville
    • Auckland
    • Thames
    • Tauranga
    • Hamilton
    • Whakatāne
    • Rotorua
    • Tokoroa
    • Te Kuiti
    • Taumaranui
    • Taupō
    • Gisborne
    • New Plymouth
    • Napier
    • Hastings
    • Dannevirke
    • Whanganui
    • Palmerston North
    • Levin
    • Paraparaumu
    • Masterton
    • Wellington
    • Motueka
    • Nelson
    • Blenheim
    • Westport
    • Reefton
    • Kaikōura
    • Greymouth
    • Hokitika
    • Christchurch
    • Ashburton
    • Timaru
    • Wānaka
    • Oamaru
    • Queenstown
    • Dunedin
    • Gore
    • Invercargill
  • Meet the journalists
  • Promotions & competitions
  • OneRoof property listings
  • Driven car news

Puzzles & Quizzes

  • Puzzles
    • All Puzzles
    • Sudoku
    • Code Cracker
    • Crosswords
    • Cryptic crossword
    • Wordsearch
  • Quizzes
    • All Quizzes
    • Morning quiz
    • Afternoon quiz
    • Sports quiz

Regions

  • Northland
    • All Northland
    • Far North
    • Kaitaia
    • Kerikeri
    • Kaikohe
    • Bay of Islands
    • Whangarei
    • Dargaville
    • Kaipara
    • Mangawhai
  • Auckland
  • Waikato
    • All Waikato
    • Hamilton
    • Coromandel & Hauraki
    • Matamata & Piako
    • Cambridge
    • Te Awamutu
    • Tokoroa & South Waikato
    • Taupō & Tūrangi
  • Bay of Plenty
    • All Bay of Plenty
    • Katikati
    • Tauranga
    • Mount Maunganui
    • Pāpāmoa
    • Te Puke
    • Whakatāne
  • Rotorua
  • Hawke's Bay
    • All Hawke's Bay
    • Napier
    • Hastings
    • Havelock North
    • Central Hawke's Bay
    • Wairoa
  • Taranaki
    • All Taranaki
    • Stratford
    • New Plymouth
    • Hāwera
  • Manawatū - Whanganui
    • All Manawatū - Whanganui
    • Whanganui
    • Palmerston North
    • Manawatū
    • Tararua
    • Horowhenua
  • Wellington
    • All Wellington
    • Kapiti
    • Wairarapa
    • Upper Hutt
    • Lower Hutt
  • Nelson & Tasman
    • All Nelson & Tasman
    • Motueka
    • Nelson
    • Tasman
  • Marlborough
  • West Coast
  • Canterbury
    • All Canterbury
    • Kaikōura
    • Christchurch
    • Ashburton
    • Timaru
  • Otago
    • All Otago
    • Oamaru
    • Dunedin
    • Balclutha
    • Alexandra
    • Queenstown
    • Wanaka
  • Southland
    • All Southland
    • Invercargill
    • Gore
    • Stewart Island
  • Gisborne

Media

  • Video
    • All Video
    • NZ news video
    • Herald NOW
    • Business news video
    • Politics news video
    • Sport video
    • World news video
    • Lifestyle video
    • Entertainment video
    • Travel video
    • Markets with Madison
    • Kea Kids news
  • Podcasts
    • All Podcasts
    • The Front Page
    • On the Tiles
    • Ask me Anything
    • The Little Things
  • Cartoons
  • Photo galleries
  • Today's Paper - E-editions
  • Photo sales
  • Classifieds

NZME Network

  • Advertise with NZME
  • OneRoof
  • Driven Car Guide
  • BusinessDesk
  • Newstalk ZB
  • Sunlive
  • ZM
  • The Hits
  • Coast
  • Radio Hauraki
  • The Alternative Commentary Collective
  • Gold
  • Flava
  • iHeart Radio
  • Hokonui
  • Radio Wanaka
  • iHeartCountry New Zealand
  • Restaurant Hub
  • NZME Events

SubscribeSign In
Advertisement
Advertise with NZME.
Home / New Zealand

Rotorua youngster's little brother big help in beating the odds of mitochondria

Katee Shanks
By Katee Shanks
Multimedia journalist·Rotorua Daily Post·
23 Feb, 2018 06:32 PM3 mins to read

Subscribe to listen

Access to Herald Premium articles require a Premium subscription. Subscribe now to listen.
Already a subscriber?  Sign in here

Listening to articles is free for open-access content—explore other articles or learn more about text-to-speech.
‌
Save

    Share this article

Teimana with his family. Photo/Supplied

Teimana with his family. Photo/Supplied

Rotorua's Teimana and Soul Emery-Maaka share a brotherly bond second to none.

Although the youngest of the siblings, 3-year-old Soul is helping his big brother reach milestones the family once only hoped he would reach, while also being fiercely protective of him.

Despite a normal start in life, Teimana began to change at 6 months old, and at 9 months was diagnosed with mitochondrial disease.

Mitochondrial disease is genetic and the type Teimana has – 100 per cent Leigh disease – doesn't have a good prognosis.

His parents Levi Emery and partner Rico Maaka were told when their son was diagnosed that his life expectancy was probably between one and two years, although there was a chance he could make it to his teens.

Advertisement
Advertise with NZME.
Advertisement
Advertise with NZME.
Teimana. Photo/Supplied
Teimana. Photo/Supplied

Teimana is now 5 and beating those early odds with, his mother believes, help from Soul.

"The past two years have been really good," Emery said. "2017 was probably the best year Teimana has had. He was only in hospital twice and one of those times was because we were going away and wanted him to get better quickly.

"His seizures have dropped from sometimes 20 a day to between two and five."

Advertisement
Advertise with NZME.

She is positive things started getting better when Soul began to interact with his brother.

"Soul treats Teimana like he treats everyone else although he knows something isn't quite right. He growls any other kids who come round and touch any of Teimana's medical equipment.

"But because he is always doing stuff with him, Teimana moves more and is also a lot more vocal.

EASY RIDER: Teimana Emery-Maaka (centre) on horseback in 2014. Photo/File
EASY RIDER: Teimana Emery-Maaka (centre) on horseback in 2014. Photo/File

"His arrival has probably helped me a little more too as, before he came along, I wrapped Teimana in cotton wool and I'm not able to do that anymore."

She still admits she has trust issues with other people when it comes to her son.

"I do things my way and struggle to let anyone else take over."

A fulltime caregiver, Emery says she does take a little more time for herself nowadays than she ever has.

"In the early days if I went to bed absolutely exhausted after looking after Teimana then I'd feel better – I'm not quite as bad as that anymore."

Emery said she and Maaka still took things week by week with their firstborn but watching him achieve small things had been amazing.

"He can put his fingers in his mouth now. That took a while but now he's always got his fingers in his mouth. In his own unique way he can roll onto his side and, while he's on his tummy he can turn his head from side to side."

Advertisement
Advertise with NZME.

One of the hardest things about mitochondrial disease is the uncertainty.

EASY RIDER: Teimana Emery-Maaka (centre) on horseback in 2014. Photo/File
EASY RIDER: Teimana Emery-Maaka (centre) on horseback in 2014. Photo/File

"As part of a mito support group we've seen four of Teimana's mito friends pass away in the past four years. Kids with the disease can be doing so well and then get a cold and go downhill so quickly.

"That's always in the back of your mind."

Emery also paid thanks to Teimana's Rotorua team.

"Starship was great but when we came back to Rotorua, the medical team hadn't had too much experience with mito – it's such a rare disease.

"But now we have an awesome homecare nurse and an awesome paediatrician as part of his team."

Advertisement
Advertise with NZME.
Save

    Share this article

Latest from New Zealand

New ZealandUpdated

Heavy rain warnings extended as front sits over central North Island

03 Jul 09:22 AM
New Zealand

Fatal crash charge: 20-year-old to face court over Southland tragedy

03 Jul 08:09 AM
New Zealand

'Needs to be killed': Gang president allegedly ordered fatal attack on fellow member

03 Jul 08:00 AM

There’s more to Hawai‘i than beaches and buffets – here’s how to see it differently

sponsored
Advertisement
Advertise with NZME.

Latest from New Zealand

Heavy rain warnings extended as front sits over central North Island

Heavy rain warnings extended as front sits over central North Island

03 Jul 09:22 AM

Rain started falling at the top of the country before dawn.

Fatal crash charge: 20-year-old to face court over Southland tragedy

Fatal crash charge: 20-year-old to face court over Southland tragedy

03 Jul 08:09 AM
'Needs to be killed': Gang president allegedly ordered fatal attack on fellow member

'Needs to be killed': Gang president allegedly ordered fatal attack on fellow member

03 Jul 08:00 AM
How student loan penalties are keeping Kiwis from returning home

How student loan penalties are keeping Kiwis from returning home

03 Jul 07:49 AM
From early mornings to easy living
sponsored

From early mornings to easy living

NZ Herald
  • About NZ Herald
  • Meet the journalists
  • Newsletters
  • Classifieds
  • Help & support
  • Contact us
  • House rules
  • Privacy Policy
  • Terms of use
  • Competition terms & conditions
  • Our use of AI
Subscriber Services
  • NZ Herald e-editions
  • Daily puzzles & quizzes
  • Manage your digital subscription
  • Manage your print subscription
  • Subscribe to the NZ Herald newspaper
  • Subscribe to Herald Premium
  • Gift a subscription
  • Subscriber FAQs
  • Subscription terms & conditions
  • Promotions and subscriber benefits
NZME Network
  • The New Zealand Herald
  • The Northland Age
  • The Northern Advocate
  • Waikato Herald
  • Bay of Plenty Times
  • Rotorua Daily Post
  • Hawke's Bay Today
  • Whanganui Chronicle
  • Viva
  • NZ Listener
  • Newstalk ZB
  • BusinessDesk
  • OneRoof
  • Driven Car Guide
  • iHeart Radio
  • Restaurant Hub
NZME
  • About NZME
  • NZME careers
  • Advertise with NZME
  • Digital self-service advertising
  • Book your classified ad
  • Photo sales
  • NZME Events
  • © Copyright 2025 NZME Publishing Limited
TOP