Marcel Robert lives in a rest home. He is 31 years old. Natalie Akoorie finds out what it's like to be unable to live life because of an illness and why funding for research is so important.

In a darkened room at Oxford Court Lifecare in Dunedin, a man who should be in the prime of his life is wasting away.

Marcel Robert is bedbound, unable to care for himself, barely able to hold a conversation above a whisper.

He's been living like this, solely reliant on caregivers to survive, for 18 months and there's no hope of improvement anytime

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