In the first six months of her life, Zani Tolu almost died twice.

The West Auckland baby has had blood and bone marrow transfusions and received a therapy every fortnight which sees her injected with a plasma-based blood product to boost her immune system.

She was nine weeks premature when she was born in December and most of those treatments came before she was even due.

Mother Malia Tolu was told that made her the only New Zealander to have a bone marrow transplant in the neo-natal unit and the youngest to start receiving the plasma-based drug.

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Through all that,