Marfan website might help

Re the article All They Need Is Love (April 16) re Marfan syndrome.
I know there's a New Zealnd foundation for Ehlers/Danlos syndrome, a Marfan-like disorder but no Marfan group in New Zealand.
There is a Marfan website on www.marfan.net.au with a forum for Australians and New Zealanders and others.
Trudy Whaite