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Home / New Zealand

One woman's story of loss and pain

19 Apr, 2001 04:20 AM5 mins to read

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One of the forgottoen victimes of the cervical cancer screening debacle talks to MONIQUE DEVEREUX.

Tania's baby gurgles happily in the background as she vents her anger down the telephone line.

The noise distracts her and she stops mid-rant to laugh.

"Listen to me raving on," she says. "I thought I had already got this off my chest. I guess I'm still angry, but I suppose I will be for a very long time."

The baby boy is recently adopted and is the light of Tania's life. He is especially precious because he may be the only child she and her husband will ever have.

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Tania was one of the hundreds of women whose lives were turned upside down by the revelation that their Gisborne pathologist had been misreading their cervical smears.

When she was diagnosed with cervical cancer, she was 27 and working hard to ensure that she and her husband would be financially secure enough to start a family.

A month later, her cervix and uterus were removed during a radical hysterectomy. Conceiving and giving birth to the children she had planned were never going to happen.

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Tania's life need not have changed so dramatically.

If her 1992 smear had been read correctly - abnormal instead of normal - and if she had been monitored properly in the months and years following that smear, Tania might well have been able to give birth.

Instead, she became patient 12 at the ministerial inquiry into how Dr Michael Bottrill managed to misread the smears of so many Gisborne women.

In her evidence she spoke of her dismay at discovering there were other women in her situation. She was critical of the health system that allowed Dr Bottrill to continue working without his practices being checked.

"I do not want this whole inquiry to be completed and nothing done to stop this unforgivable mess from happening again," she told the inquiry panel.

"I want to know the pain that my family and I have suffered and continue to suffer has not been in vain. I want an assurance that this will never happen again.

"I do not want anyone else to be subjected to such a cruelty."

This week, Tania - she does not want her real name used - joined many other cancer victims in Gisborne to hear the inquiry panel's report into the scandal.

She came away with the 273-page document in hand and a seething anger.

She says Health Minister Annette King's delivery of the report was condescending. And the Director-General of Health, Karen Poutasi, was "unfeeling - she even looked bored."

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The report was "great, but like Kerri [Tombleson, another Gisborne victim] said, we've heard it all before in the Cartwright inquiry. Ten points to the Government for accepting the recommendations, but this time are we really going to see things done properly?"

Twelve years ago the Cartwright inquiry, headed by Silvia Cartwright - then a judge but now Governor-General - investigated the non-treatment of some women with pre-cancerous conditions.

The women had been patients of Dr Herbert Green at National Women's Hospital in Auckland and had been subjected to what was described as his "unfortunate experiment."

The resulting report led to the creation of the national cervical screening programme, the very system that let down the women of Gisborne because the Cartwright recommendations were never fully implemented.

"What I really find hard to believe is that the Ministry of Health, the same agency that stuffed it all up in the first place, is still going to be running the system," Tania says.

"Are they hoping for third time lucky or something?"

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She says she is not automatically writing off the report. She would like to be confident that the screening programme will save more lives, but it will be a difficult task.

"I'm sure it will be for all the women. No one wants this horrible injustice to have to ever happen again."

The report, written by Ailsa Duffy, QC, who presided over last year's 12-week inquiry, includes 46 recommendations. Of those, the ministry has 27 either completed or under way.

The report found that although Dr Bottrill's practice was clearly unacceptable, the health system allowed it to happen.

At its official release in Gisborne on Tuesday, Mrs King stressed that the report set out not to lay blame but to focus on finding why there had been a failing and making sure it would never happen again.

The women of Gisborne wanted someone to blame but accept there will never be a Ministry of Health head on a platter.

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"I think we all just want to move on now," Tania says.

"We have all said our piece and given evidence. We've done our part. We have talked and talked and we have this result now. We need to put it behind us and live our lives."

But she knows this won't be easy.

Along with many others, she stood up in front of a room full of strangers to talk about her most intimate medical history.

The women's stories were horrific.

There were the young women whose choice to have children was taken away because they had to have hysterectomies.

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There was the woman who had to have not only her cervix, uterus and ovaries removed to save her life, but her bladder and vagina as well. And there were the women who have died.

"I'm lucky. I now have a baby, I have my health and I have my life. I've survived. But the tragedy is that I should never have had to be a survivor," says Tania.

"The tragedy is that this was ever allowed to happen."

Full report of the Inquiry

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