For South Australian mum-of-three, Renee Staska, her time with her children is bittersweet. She tries to make the best of each day and create beautiful memories, but she knows their time as a happy family is going to be cut short. Because all three of her children have been diagnosed
Aussie solo-mum’s three children diagnosed with childhood dementia
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Renee with her three children who have all been diagnosed with dementia. Photo / A Current Affair
Staska says “most children with Niemann-Pick disease type C1 don’t live to see their 20th birthday.”
According to news.com.au, it’s been more than three years since the family’s diagnosis and only now are the children beginning to show dementia symptoms.
For Hudson, keeping up with reading in school has become challenging and for Holly she is experiencing confusion as to why her abilities no longer match her peers’.
Symptoms of dementia in children also include co-ordination difficulties, poor muscle tone, difficulty with swallowing and abnormal eye movement.
In spite of the ever-growing challenges Staska will face, she told A Current Affair that as a mother, she has to get up every day and remain strong for her children.
According to news.com.au, a team at Murdoch University in Perth are working on a drug that could aid children with dementia by reducing the levels of fat their bodies produce.
Dr May Aung-Htut explained that an impact of childhood dementia is an inability to get rid of fat molecules which leads to build up to a point of toxicity, causing brain cells to die.
However, the drug’s availability is unknown and could take 10 months to 20 years before it’s ready.