"But at the same time it's kind of lucky he's so young because he doesn't know any different and he doesn't feel like he's missing out.
"At the end of the day it's a small cost for the bigger picture. He'll have lots more Christmases to make up for this one," she said.
Grayson Partridge has more than 800 courage beads - these are just some of them. Photo/Supplied
Jody and her mum, who left her job to support the family, have been at Starship the entire time.
Meanwhile, Alex has had a few commitments with police college training and recently received the "exciting news" he had been accepted.
Jody said during the latest treatment plan she had seen "every shade of Grayson".
"We've had days where he is running around in circles, just an absolute box of birds, like a normal toddler doing normal toddler things.
"To other days where he's completely catatonic and he is on an oxygen mask, he won't move, he won't wake up — really scary days to be honest."
Jody said the treatment was going to plan so far and recently Grayson had been allowed short breaks off the ward.
If she had a Christmas wish, it would be that the treatment continues to work.
"Sometimes you think if I had it any other way would I want anything different for him today? Everybody wants healthy kids and happy kids, and 99 per cent of the time at the moment he is happy, and apart from the healthy - we're working on it."
