Griffin reportedly raised $100,000 at a fundraiser just hours before his death, with the ice bucket challenge having been one of the biggest talking points online in the past few days.
Oprah, Justin Bieber, Britney Spears, Bill Gates, Mark Zuckerberg, Lady Gaga, Charlie Sheen, George Bush and the Foo Fighters have all taken part in the campaign, which sees a bucket of ice water dumped over participants' heads, with even Vladimir Putin being challenged this week.
Video: Taylor Swift takes the ice bucket challenge
Video: Foo Fighters - ALS IceBucket Challenge
The drive has so far raised $22.9 million in aid of Amyotrophic lateral sclerosis.
"Helping out was nothing new for Griff," Frates wrote on Facebook. "He held his own event for me back in 2012, just a few months after diagnosis.
"He worked his butt off these last few weeks for ALS. We texted everyday, planning and scheming ways to raise funds and plan events."
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- Independent