Alivia McRae recalls the flood of anxiety she felt when her midwife mentioned her baby boy's slightly pointed forehead didn't look normal.

The Nelson first-time mother had noticed her Braxton Watt's "misshaped" head directly post-birth, but it wasn't until six weeks later when told the bump "hadn't gone down much" that her alarm went up.

"It was a horrible feeling, this nervous feeling. I thought that was just normal for a baby when they are first born. I never thought I'd have to go through something this traumatic," she said.

According to doctors, McRae ,19, is not unique in not