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Home / New Zealand

New bid to get neurology services

By Erin Kavanagh-Hallerin kavanagh-hall@age co nz
Wairarapa Times-Age·
1 Jan, 2014 07:15 PM4 mins to read

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Parkinson's Wairarapa and its clients were left despondent after their bid to bring a neurologist to the region was rejected - but they're not giving up just yet.

Last year, the organisation's chairman, Mike Lynch, and co-ordinator Alix Cooper requested that Wairarapa District Health Board (DHB) provide part-time neurology services from a visiting specialist, so local Parkinson's patients could be treated closer to home.

However, Capital & Coast DHB, the regional provider for neurology services, said it did not have the capacity to provide neurology services to Wairarapa at the time.

"Basically, the DHB gave us a big fat no," said Mrs Cooper.

"It was extremely disappointing."

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Parkinson's Wairarapa has 65 clients on its books, most of whom are 60 and over, who have to travel to Wellington - or further afield - for appointments.

Mr Lynch said he was disheartened by CCDHB's response, but plans to make another approach to the board.

This time, he hopes to elicit support from other Wairarapa agencies whose clients who would benefit from a visiting neurology service, such as stroke survivors and those living with multiple sclerosis, Alzheimer's and head injuries.

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"We believe there are at least 300 people in Wairarapa with neurological complaints," he said.

"Sixty people with Parkinson's obviously wasn't going to sway any change. But, I think we ought to form a combined front - that way, we have hundreds of people with a real need.

"Not a lot of doctors are going into neurology at the moment, so [CCDHB's decision] has left us with not a great deal of hope on the horizon."

Mr Lynch said people diagnosed with Parkinson's generally needed to see a neurologist at least once a year.

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A neurology specialist can monitor a patient's medication levels, which Mr Lynch says can be tricky to stabilise.

"Parkinson's is treated by a drug called Eldopar, which regulates dopamine," he said.

"But it can be difficult to get the dosage right. If you've not got the right dose, you get people feeling great for the first few hours, then getting down in the dumps because the dopamine levels have worn off.

"With Parkinson's to be treated correctly and well, you need someone with a lot of experience. It's not like taking an Aspirin."

For many Parkinson's Wairarapa clients, travelling to Wellington or appointments has an adverse impact on their well-being, exacerbating the fatigue and other motor symptoms - such as those affecting balance and movement - that come with Parkinson's.

"It's very wearing on them to take that long trip," said Mr Lynch.

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"It's a hassle for people to get around as well. We had one man who went to a private practice in Days Bay, and he had to walk up a huge hill to get there."

Mrs Cooper wrote to Wairarapa DHB in June last year, requesting consideration of a visiting neurologist, and received a letter from Graham Dyer, chief executive of Hutt Valley and Wairarapa DHBs in August.

He recommended clients use the Red Cross bus service, which transports patients from Wairarapa to Wellington for medical appointments.

While Mr Lynch commends the Red Cross service, he says the bus trip can make the journey into Wellington even longer - with patients being dropped off at various other venues - for already exhausted clients.

Dr David Abernethy, clinical leader of neurology services, said CCDHB was working to develop sub-regional neurology and stroke services as part of its 3DHB Health Services Development Plan.

He said the DHB's eight neurology specialists - an equivalent of 4.5 full-time doctors were "very aware that the provision of neurological services is restricted" in Wairarapa, and were "dedicated towards providing a good service to the region".

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However, this is not a satisfactory answer for Mrs Cooper or her clients.

"If they've got that many neurologists, surely you'd think one of them could visit here," she said.

"It makes you feel like your clients aren't important enough for them. It's hard - our clients are just becoming resigned that things aren't going to change in a hurry."

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