A few months ago, as I began my restaurant scouting trips, I was in pain almost every night. My partner urged me to see a gastroenterologist. As it turns out, a type of bacteria that under a microscope looks almost like a spiral pasta was wreaking havoc on my stomach lining. The bacteria is called Helicobacter pylori, H. pylori for short, and it lives in half of the world's people.
H. pylori has evolved in human microbiomes for at least 100,000 years. It came into a bigger spotlight in 2005, when Australian physicians Dr. Barry J. Marshall and Dr. J. Robin Warren won the Nobel Prize in physiology or medicine for discovering the link between the bacteria and peptic ulcers.
Many people carry H. pylori in their stomachs without any negative consequences, but for some, it can move into the mucus layer of the stomach and cause a host of problems, from stomach inflammation to ulcers to stomach cancer, said Nina Salama, a microbiologist at the Fred Hutchinson Cancer Center in Seattle.
Many people who have H. pylori probably contracted it during early childhood through contact, like sharing food or breathing aerosols released from vomiting, Salama said. It can also be transmitted through food that was not cleaned or cooked in a safe way, or drinking water that is contaminated with the bacteria.
H. pylori is more prevalent in certain parts of the world, like Africa and South Asia.
As hygiene standards have improved in the United States, H. pylori has become less common there. Salama said that some studies suggested that symptoms could be managed with dietary changes, like eating lots of fruit and vegetables or lowering salt intake. There's also a treatment: a high dose of antibiotics and acid blockers taken for several days.
Before testing positive for H. pylori, I had never heard of the bacteria. H. pylori isn't getting the same public attention as irritable bowel syndrome, the gut issue currently making the rounds on TikTok among users who identify as "hot girls with IBS." It isn't discussed in the media as much as celiac disease, a chronic disorder that makes people sensitive to gluten.
But once I started talking about my own challenges, I found others in food-related jobs who had tested positive for H. pylori.
Luisa Weiss, an American cookbook author who lives in Berlin, discovered she had H. pylori in 2019. After years of bloating and irregular bowel movements, the positive test "felt like a liberation," she said.
People don't talk about these sorts of health challenges enough, she added, because they find it embarrassing.
"And so they don't realise people are in danger," she said.
Weiss took the antibiotics but was also diagnosed with celiac disease. Even though her stomach problems have improved, she is cautious about what she eats. She asks others to help her taste-test food when she is developing recipes and avoids spicy dishes at restaurants.
Aileen Corrieri stopped writing her food blog, Hungry Aileen, a few years ago after she learned she had H. pylori. Like Weiss, even after treatment, she was afraid to return to her former diet.
"I just spend a lot of time on TikTok and YouTube watching cooking videos," she said, "just to live through the visuals."
Corrieri said her doctors didn't take her stomach troubles seriously: "They just told me, 'Don't eat acidic food, you are fine.' I felt really alone in this."
Despite all the research on H. pylori, there are still some aspects of it that aren't fully understood, Salama said, like the precise way in which H. pylori leads to cancer.
Marshall, the Nobel winner, said in an interview that the bacteria's origins were also unclear.
"How did the human race become so universally infected?" he said.
Some studies suggest that H. pylori can be beneficial for the esophagus or guard against asthma. But Marshall believes that people who have stomach problems and test positive for H. pylori should opt for antibiotics.
I finished my course of antibiotics about a month ago. It was a painful 10 days in which I vomited while exercising, spent a full day nauseated on my back and constantly had a bitter, metallic taste in my mouth. In a few days, I'll see my doctor again and find out if the bacteria are gone.
I've eaten a few restaurant meals since, but it's hard to tell whether my situation has changed. I have realised, though, how much I had normalised being uncomfortable.
I doubt my stomachaches will disappear entirely. But if they do return with a vengeance, maybe next time I won't wait 30 years to see a doctor.
This article originally appeared in The New York Times.
Written by: Priya Krishna
© 2022 THE NEW YORK TIMES
