NZ Herald
  • Home
  • Latest news
  • Herald NOW
  • Video
  • New Zealand
  • Sport
  • World
  • Business
  • Entertainment
  • Podcasts
  • Quizzes
  • Opinion
  • Lifestyle
  • Travel
  • Viva
  • Weather

Subscriptions

  • Herald Premium
  • Viva Premium
  • The Listener
  • BusinessDesk

Sections

  • Latest news
  • New Zealand
    • All New Zealand
    • Crime
    • Politics
    • Education
    • Open Justice
    • Scam Update
  • Herald NOW
  • On The Up
  • World
    • All World
    • Australia
    • Asia
    • UK
    • United States
    • Middle East
    • Europe
    • Pacific
  • Business
    • All Business
    • MarketsSharesCurrencyCommoditiesStock TakesCrypto
    • Markets with Madison
    • Media Insider
    • Business analysis
    • Personal financeKiwiSaverInterest ratesTaxInvestment
    • EconomyInflationGDPOfficial cash rateEmployment
    • Small business
    • Business reportsMood of the BoardroomProject AucklandSustainable business and financeCapital markets reportAgribusiness reportInfrastructure reportDynamic business
    • Deloitte Top 200 Awards
    • CompaniesAged CareAgribusinessAirlinesBanking and financeConstructionEnergyFreight and logisticsHealthcareManufacturingMedia and MarketingRetailTelecommunicationsTourism
  • Opinion
    • All Opinion
    • Analysis
    • Editorials
    • Business analysis
    • Premium opinion
    • Letters to the editor
  • Politics
  • Sport
    • All Sport
    • OlympicsParalympics
    • RugbySuper RugbyNPCAll BlacksBlack FernsRugby sevensSchool rugby
    • CricketBlack CapsWhite Ferns
    • Racing
    • NetballSilver Ferns
    • LeagueWarriorsNRL
    • FootballWellington PhoenixAuckland FCAll WhitesFootball FernsEnglish Premier League
    • GolfNZ Open
    • MotorsportFormula 1
    • Boxing
    • UFC
    • BasketballNBABreakersTall BlacksTall Ferns
    • Tennis
    • Cycling
    • Athletics
    • SailingAmerica's CupSailGP
    • Rowing
  • Lifestyle
    • All Lifestyle
    • Viva - Food, fashion & beauty
    • Society Insider
    • Royals
    • Sex & relationships
    • Food & drinkRecipesRecipe collectionsRestaurant reviewsRestaurant bookings
    • Health & wellbeing
    • Fashion & beauty
    • Pets & animals
    • The Selection - Shop the trendsShop fashionShop beautyShop entertainmentShop giftsShop home & living
    • Milford's Investing Place
  • Entertainment
    • All Entertainment
    • TV
    • MoviesMovie reviews
    • MusicMusic reviews
    • BooksBook reviews
    • Culture
    • ReviewsBook reviewsMovie reviewsMusic reviewsRestaurant reviews
  • Travel
    • All Travel
    • News
    • New ZealandNorthlandAucklandWellingtonCanterburyOtago / QueenstownNelson-TasmanBest NZ beaches
    • International travelAustraliaPacific IslandsEuropeUKUSAAfricaAsia
    • Rail holidays
    • Cruise holidays
    • Ski holidays
    • Luxury travel
    • Adventure travel
  • Kāhu Māori news
  • Environment
    • All Environment
    • Our Green Future
  • Talanoa Pacific news
  • Property
    • All Property
    • Property Insider
    • Interest rates tracker
    • Residential property listings
    • Commercial property listings
  • Health
  • Technology
    • All Technology
    • AI
    • Social media
  • Rural
    • All Rural
    • Dairy farming
    • Sheep & beef farming
    • Horticulture
    • Animal health
    • Rural business
    • Rural life
    • Rural technology
    • Opinion
    • Audio & podcasts
  • Weather forecasts
    • All Weather forecasts
    • Kaitaia
    • Whangārei
    • Dargaville
    • Auckland
    • Thames
    • Tauranga
    • Hamilton
    • Whakatāne
    • Rotorua
    • Tokoroa
    • Te Kuiti
    • Taumaranui
    • Taupō
    • Gisborne
    • New Plymouth
    • Napier
    • Hastings
    • Dannevirke
    • Whanganui
    • Palmerston North
    • Levin
    • Paraparaumu
    • Masterton
    • Wellington
    • Motueka
    • Nelson
    • Blenheim
    • Westport
    • Reefton
    • Kaikōura
    • Greymouth
    • Hokitika
    • Christchurch
    • Ashburton
    • Timaru
    • Wānaka
    • Oamaru
    • Queenstown
    • Dunedin
    • Gore
    • Invercargill
  • Meet the journalists
  • Promotions & competitions
  • OneRoof property listings
  • Driven car news

Puzzles & Quizzes

  • Puzzles
    • All Puzzles
    • Sudoku
    • Code Cracker
    • Crosswords
    • Cryptic crossword
    • Wordsearch
  • Quizzes
    • All Quizzes
    • Morning quiz
    • Afternoon quiz
    • Sports quiz

Regions

  • Northland
    • All Northland
    • Far North
    • Kaitaia
    • Kerikeri
    • Kaikohe
    • Bay of Islands
    • Whangarei
    • Dargaville
    • Kaipara
    • Mangawhai
  • Auckland
  • Waikato
    • All Waikato
    • Hamilton
    • Coromandel & Hauraki
    • Matamata & Piako
    • Cambridge
    • Te Awamutu
    • Tokoroa & South Waikato
    • Taupō & Tūrangi
  • Bay of Plenty
    • All Bay of Plenty
    • Katikati
    • Tauranga
    • Mount Maunganui
    • Pāpāmoa
    • Te Puke
    • Whakatāne
  • Rotorua
  • Hawke's Bay
    • All Hawke's Bay
    • Napier
    • Hastings
    • Havelock North
    • Central Hawke's Bay
    • Wairoa
  • Taranaki
    • All Taranaki
    • Stratford
    • New Plymouth
    • Hāwera
  • Manawatū - Whanganui
    • All Manawatū - Whanganui
    • Whanganui
    • Palmerston North
    • Manawatū
    • Tararua
    • Horowhenua
  • Wellington
    • All Wellington
    • Kapiti
    • Wairarapa
    • Upper Hutt
    • Lower Hutt
  • Nelson & Tasman
    • All Nelson & Tasman
    • Motueka
    • Nelson
    • Tasman
  • Marlborough
  • West Coast
  • Canterbury
    • All Canterbury
    • Kaikōura
    • Christchurch
    • Ashburton
    • Timaru
  • Otago
    • All Otago
    • Oamaru
    • Dunedin
    • Balclutha
    • Alexandra
    • Queenstown
    • Wanaka
  • Southland
    • All Southland
    • Invercargill
    • Gore
    • Stewart Island
  • Gisborne

Media

  • Video
    • All Video
    • NZ news video
    • Herald NOW
    • Business news video
    • Politics news video
    • Sport video
    • World news video
    • Lifestyle video
    • Entertainment video
    • Travel video
    • Markets with Madison
    • Kea Kids news
  • Podcasts
    • All Podcasts
    • The Front Page
    • On the Tiles
    • Ask me Anything
    • The Little Things
  • Cartoons
  • Photo galleries
  • Today's Paper - E-editions
  • Photo sales
  • Classifieds

NZME Network

  • Advertise with NZME
  • OneRoof
  • Driven Car Guide
  • BusinessDesk
  • Newstalk ZB
  • Sunlive
  • ZM
  • The Hits
  • Coast
  • Radio Hauraki
  • The Alternative Commentary Collective
  • Gold
  • Flava
  • iHeart Radio
  • Hokonui
  • Radio Wanaka
  • iHeartCountry New Zealand
  • Restaurant Hub
  • NZME Events

SubscribeSign In
Advertisement
Advertise with NZME.
Home / Lifestyle

Family stress as dad battles rare disease

Vaimoana Tapaleao
By Vaimoana Tapaleao
Pasifika Editor·NZ Herald·
23 Jan, 2014 04:30 PM3 mins to read

Subscribe to listen

Access to Herald Premium articles require a Premium subscription. Subscribe now to listen.
Already a subscriber?  Sign in here

Listening to articles is free for open-access content—explore other articles or learn more about text-to-speech.
‌
Save

    Share this article

Gene Chase, here with wife Dee, was told last June that he has the symptoms of the rare multicentric Castleman's disease.

Gene Chase, here with wife Dee, was told last June that he has the symptoms of the rare multicentric Castleman's disease.

Debt piles up as non-funded treatment for illness costs thousands every month

Gene Chase has one simple want - to live. The Whangaparaoa 54-year-old has been struggling with his health for the past few months after being diagnosed with probable multicentric Castleman's disease.

Although it is not a form of cancer, it is similar to lymphoma - the cancer that affects the lymph nodes or glands - and hasled to him suffering dramatic weight loss, nausea and diarrhoea, bouts of high fever and crumbling teeth.

At the end of last June, Mr Chase went into hospital after feeling particularly ill.

"I thought they'd just give me some pills. But then they came out and said I'd be having an operation. They thought I had a burst ulcer."

Advertisement
Advertise with NZME.
Advertisement
Advertise with NZME.

What surgeons found was much worse - mass growths within the lymphatic tissues in Mr Chase's stomach and chest. He was told he had symptoms of the rare multicentric Castleman's disease.

The family were then told the drug he needed to treat it, Tocilizumab, was not government-funded and would be available only through clinical trials.

"Initially, we were told that the treatment would be every three months and it would cost $2,500. It wasn't until I was on the table, hooked up (having the first treatment), that my wife asked: 'So we have to do this every three months?' The doctor looked at us and said: 'Oh no, you have to get this every two to three weeks'.

"If I'd known that it was going to ... cost that much, I wouldn't have gone through with it. I was tempted to pull the plug out."

Advertisement
Advertise with NZME.

Mr Chase has had two rounds of medicine and treatment, paid for with the help of family, friends and the family's church.

But trying to save for ongoing treatment, other medical bills and the cost of having him off work for long periods last year has put the family in high debt.

His wife, Dee Chase, said the situation had been extremely difficult for them and their two daughters - the youngest will celebrate her 21st birthday this month.

"We're always worrying and the stress levels are high not only because of what Gene's got but the mortgage and the bills and the children."

Discover more

Lifestyle

New lung cancer drug approved for funding

08 Jan 09:15 PM
Lifestyle

Six times the cervical cancer risk if you skip smears - research

15 Jan 12:45 AM
Lifestyle

Should cancer patients describe their illness as a battle?

15 Jan 10:15 PM
Lifestyle

Kiwis 'dying of embarrassment'

22 Jan 02:12 AM

Auckland DHB clinical haemotologist Dr Paul Ockelford said it was difficult for Pharmac to fund drugs for rare diseases because the high costs did not balance out.

Mrs Chase's employer, Telecom, has set up a Givealittle donation page in an effort to help.

Castleman's disease

• Rare disease of lymph nodes and related tissues
• Not a cancer, but similar to lymphoma
• Symptoms include severe weight loss, fatigue, infections and fever

Save

    Share this article

Latest from Lifestyle

Premium
Lifestyle

I snoop, you snoop, we all snoop on each other’s phone screens

27 Jun 06:00 AM
Royals

Prince William under fire from Peta because his dog had puppies

27 Jun 03:03 AM
Lifestyle

'Denied a fighting chance': Auckland woman's plea to fund life-saving cancer drug

27 Jun 01:00 AM

Why wallpaper works wonders

sponsored
Advertisement
Advertise with NZME.

Latest from Lifestyle

Premium
I snoop, you snoop, we all snoop on each other’s phone screens

I snoop, you snoop, we all snoop on each other’s phone screens

27 Jun 06:00 AM

New York Times: Are privacy screens ruining the joy of reading over a stranger's shoulder?

Prince William under fire from Peta because his dog had puppies

Prince William under fire from Peta because his dog had puppies

27 Jun 03:03 AM
'Denied a fighting chance': Auckland woman's plea to fund life-saving cancer drug

'Denied a fighting chance': Auckland woman's plea to fund life-saving cancer drug

27 Jun 01:00 AM
7 ways to get a feel-good fix of hormone oxytocin

7 ways to get a feel-good fix of hormone oxytocin

27 Jun 12:59 AM
A new care model to put patients first
sponsored

A new care model to put patients first

NZ Herald
  • About NZ Herald
  • Meet the journalists
  • Newsletters
  • Classifieds
  • Help & support
  • Contact us
  • House rules
  • Privacy Policy
  • Terms of use
  • Competition terms & conditions
  • Our use of AI
Subscriber Services
  • NZ Herald e-editions
  • Daily puzzles & quizzes
  • Manage your digital subscription
  • Manage your print subscription
  • Subscribe to the NZ Herald newspaper
  • Subscribe to Herald Premium
  • Gift a subscription
  • Subscriber FAQs
  • Subscription terms & conditions
  • Promotions and subscriber benefits
NZME Network
  • The New Zealand Herald
  • The Northland Age
  • The Northern Advocate
  • Waikato Herald
  • Bay of Plenty Times
  • Rotorua Daily Post
  • Hawke's Bay Today
  • Whanganui Chronicle
  • Viva
  • NZ Listener
  • Newstalk ZB
  • BusinessDesk
  • OneRoof
  • Driven Car Guide
  • iHeart Radio
  • Restaurant Hub
NZME
  • About NZME
  • NZME careers
  • Advertise with NZME
  • Digital self-service advertising
  • Book your classified ad
  • Photo sales
  • NZME Events
  • © Copyright 2025 NZME Publishing Limited
TOP