The spokesperson added: “We remain deeply grateful for his courage, advocacy, and continued commitment to the ALS community, and we honour him fully this evening with our profound respect and support. Aaron Lazar, Broadway star and Grammy Award nominee, will accept the award on his behalf”.
Dane previously expressed his gratitude at the recognition.
Speaking last September, when it was announced he would receive the award, he said: “This award is more than an honour. [The award is] a reflection of the incredible strength and courage I see in the ALS community every day”.
The Euphoria actor recently revealed he is writing his memoir, which will be titled Book of Days: A Memoir in Moments.
He said in a statement: “I wake up every morning, and I’m immediately reminded that this is real – this illness, this challenge and that’s exactly why I’m writing this book.
“I want to capture the moments that shaped me – the beautiful days, the hard ones, the ones I never took for granted – so that if nothing else, people who read it will remember what it means to live with heart.”
Dane – who has two daughters, Billie, 15, and Georgia, 13 – hopes that some will “find meaning in their own days” thanks to his upcoming tome.
He added: “If sharing this helps someone find meaning in their own days, then my story is worth telling”.
Dane’s memoir will be available in 2026, but a specific date is yet to be revealed.