Seven years ago, Mana Ruru was diagnosed with liver cancer as a result of hepatitis B. Photo / Supplied
Seven years ago, doctors offered Mana Ruru a choice: go on the waiting list for a liver transplant or be dead in 12 months.
Ruru had been diagnosed with liver cancer. In his case, the cancer was caused by hepatitis B.
Until his diagnosis, Ruru had no idea he was living with the life-threatening, chronic condition.
The 55-year-old wanted to share his story in the hope his experiences will convince more New Zealanders to get their blood tested and take liver health seriously.
It comes after the World Health Organisation has called on member states to eliminate viral hepatitis by 2030.
World Health Organisation chief Tedros Adhanom Ghebreyesus said that globally, "access to prevention, testing, and treatment services for viral hepatitis remains far too low".
Hepatitis is an inflammation of the liver, most commonly caused by viral infection. There are five main types of hepatitis: A, B, C, D and E.
Globally, one person dies from a viral hepatitis-related illness every 30 seconds.
Hepatitis B is most commonly passed on from mother to child during pregnancy or birth.
Nine out of 10 infants who are infected in this way will develop chronic hepatitis B, a potentially life-threatening liver infection that increases the risk of conditions like cirrhosis and liver cancer.
Ruru does not know how he got the virus.
"I was young. I was butch and everything like that. I had a good body on me and so I didn't pay attention.
"When you are full of life you don't really notice [your health] until the damage is done."
Looking back, Ruru said the first sign that not all was well with his body was an increase in fatigue.
"I was in Australia and I started noticing my recovery time after going out with my mates and drinking alcohol was quite bad.
"I had given up a lot of drinking when I was up in Aussie, so I went out once in a red moon."
Ruru said he did not think much of his tiredness, excusing it as a normal part of getting older.
Then Ruru moved back to New Zealand to be the primary caregiver for his mother at their farm in Waimana.
"When you are in the city you don't do too much physical work but I got back to the farm and I was getting tired early in the day."
Ruru decided it was time to take his body for its "warrant of fitness" check. He did not pass.
"They told me I had cancer of the liver. They gave me under a year to live."
Ruru's only option for extending his life was a liver transplant. At first, Ruru refused.
"But then after I hung up the phone, I was in the garden planting kumaras. I could feel the warm sun on my face and I could hear my kids.
"They were laughing and giggling and I thought to myself, 'Far out. You will never hear your kids again'."
The father of nine will forever remember that sunny morning as an important turning point.
"I didn't want to go in the hole yet. I wasn't ready for the lights to go out."
Ruru went back to his doctor and asked if a liver transplant was still on the table.
The next few months were a rigorous process of tests and intensive counselling sessions.
"I could have died while waiting but I didn't. It took over a year before a liver was presented to me."
Ruru is now cancer-free. He has also made changes to his lifestyle.
"You start looking at what you eat, changing your regime of doing things.
"I used to like diving and going out into the bush but because I am on lifetime pills those sort of things take a backbench.
"There are good days and down days."
Ruru said Hepatitis Foundation New Zealand community health nurse Helen Purcell had gone out of her way to support him and other patients along the coast.
"Her blood is worth bottling. I take my hat off to her."
Purcell said New Zealand was lucky to have a foundation dedicated to serving patients with all types of hepatitis.
"This is what we do. We try to help people feel comfortable with having hepatitis."
Purcell said the foundation focused on encouraging blood testing and diagnosis.
"People with hepatitis B don't know they have got it," Purcell said.
"We introduced the vaccination in the late 1980s so the condition is not as common.
"The people in New Zealand over the age of 35 are the ones who might not have gotten the vaccination. Those are the ones we need to find."
READ MORE:
• 'Don't be afraid': Bowel cancer survivor's call to lift 'low' test kit return rates
• Local Focus: Breast cancer also hits men and young women
• 'Don't waste a life': Mum of teen skin cancer victim welcomes new sunblock law
Ruru said he hoped people would learn from his experience.
"My advice would be if you are a drinker, stop drinking. The more you drink the more damage you do to your liver."
Ruru said blood tests were a regular thing for him now.
"I recommend you get your blood tested. If it wasn't for the blood test I would have died not knowing.
"I would have just got worse and worse until there was no way back."
Ruru spoke to NZME on World Hepatitis Awareness Day last week.
How many people in New Zealand have it?
• About 100,000
How can you get hepatitis B?
• Mothers can pass on the virus to a baby towards the end of pregnancy and during delivery. This is the most common cause of lifelong infection.
• Contact with infected bodily fluids including dried blood
• Unprotected sexual contact with someone who has the virus
• Non-sterile injections, tattoo equipment
What are some of the symptoms?
• Nausea and vomiting
• Abdominal pain
• Fever
• Tiredness
• Loss of appetite
• Dark urine
• Pale bowel motions
• Joint and muscle pain
• Jaundice (yellowing of the skin and eyes)
What are the risks associated with hepatitis B?
• Liver cirrhosis
• Liver cancer
• hepatitis D
Sources: Hepatitis Foundation New Zealand and Health Navigator NZ
A motorbike overtook a car and hit a pedestrian on Edmund Rd.