“If a mum from Gizzy can do this, imagine what a thorough and formal consultation could have done?”
Zame was diagnosed with stage IV cancer in June 2022 and given nine months to live.
But thanks to Tagrix — an unfunded generic version of a more expensive drug which she imports via a humanitarian business — she has exceeded that prognosis and seen a significant improvement in her health.
She has successfully applied to have the petition’s end date extended to May 30 following its early success on the Parliament website.
It has also been changed into a hybrid petition, meaning paper versions can also be submitted with the final numbers.
“I think New Zealanders need to stand up more. We naturally don’t want to complain,” she says.
“If there’s a cause that’s really important, and you’ve done your homework and you know that it really needs some sort of action, we need to stand up.”
She has been supported in her fight by Patient Voice Aotearoa chair Malcolm Mulholland who believes the government isn’t aware of the potential fallout from the changes, despite their best intentions of protecting people from medicines which aren’t fit for purpose.
“It is going to prevent patients from being able to access medicines that in many instances keep them alive,” Mulholland said.
Zame has planned a demonstration for May 31 outside Gisborne’s courthouse to raise awareness for her petition, before marching at Parliament on June 7.