Epilepsy trust has lots to celebrate

Maria Lowe

The Epilepsy Waikato Charitable Trust (EWCT) is celebrating two events in November.

The first is the publication of a children's story book, Ben's Buddies, written and illustrated by award-winning writer Sharon Holt and illustrator Deborah Hinde.

Epilepsy advisor for EWCT Maria Lowe said the book aims to de-mystify epilepsy and provide easily accessible information on how to help someone who is having a seizure.

The book has been translated into te reo Maori by Dr Ray Harlow and was funded by grants from ANZ Foundation and Harcourts Foundation. Free copies will be given to every primary and intermediate school in Hamilton.

The second event is a 'Go car-free for epilepsy' awareness campaign which will run from November 1-8. The campaign aims to challenge the community to opt for a car-free day in that period, and to show support for people unable to drive because of epilepsy, or other disabilities, by walking or cycling or using public transport for a day.

EWCT, through its website and Facebook sites (at www.ewct.org.nz) provides more information about the car-free day and how participants can support the campaign, either by sending photos of themselves and families enjoying travelling car-free on their chosen day, or by making a donation.

Donations can be made through EWCT's website and will be used to fund outings beyond Hamilton for people with epilepsy.

"Every day is a car-free day for many people with epilepsy and those with other disabilities," said Maria. "Life can revolve around public transport, car pooling, walking or biking, which can be a challenge in our society that is heavily reliant on the family car to get around.

"Epilepsy can have a huge social and emotional impact on a person's life, and can cause someone to feel isolated and vulnerable. EWCT recognises these difficulties, not helped often by lack of transport, and has been coordinating three courses - 'Living confidently', 'Confident cooking', and 'Job chat' - during the year to provide support and opportunities for people to meet regularly."

EWCT partnered with Methodist City Action, Blind Foundation, and other disability organisations to run the courses.

The go car-free campaign is to be an annual event in November.

For more information about the new book "Ben's Buddies", or the 'Go car-free for epilepsy' campaign, go to www.ewct.org.nz or contact Maria on 021 888 293 or email maria@ewct.org.nz.