"You not only have the survivors but it impacts on the whole family and if there is no support for the family, that survivor is lost," Miss Ruru said.
"We call it the ripple effect and we are trying to establish a support network here."
Her mother Corina Ruru said they looked forward to meeting new people tomorrow night who have had similar experiences.
"As a family you feel isolated. We know there are other families out there going through the same thing and we want to connect with them, especially those who are looking after the survivors," Mrs Ruru said.
" ... It's hard work, just going to the pictures is difficult, you have to ring in advance and plead [for space] it's a constant battle.
"Eight years on and we still find it hard, we want to say to others, 'We're here for you'."
Miss Ruru has set up a Facebook page Light up the Heavens - Brain Injury Awareness for tomorrow night's event and had also set up a closed group, NZ Brain Injury Support Network for brain injury survivors and their loved ones.