Elyse's latest scan shows the tumour is not growing, which doctors cannot explain.
It is a turnaround since July when the scan showed the tumour was only 1mm from pressing on the base of Elyse's brain stem, which would mean death.
The Johnsons have put it down to the alternative therapies they use to treat Elyse, instead of chemotherapy and radiation that doctors recommended.
Every day Elyse has cannabis oil, TBL-12 or sea cucumber, Vitamin C, probiotics, dandelion, frankincense oil, and black cumin seed oil.
Because she can no longer swallow, Elyse is fed through a gastric tube with Liquid Hope, an organic, whole-food formula from the United States.
"She looks really healthy and people who don't know she's sick just think she's tired. That's why we keep doing it."
But the therapies cost more than $4000 each month.
Blake, Elyse and Casey Johnson at Elyse's 4th birthday party. The preschooler was not expected to live this long. Photo / Supplied.
A Givealittle page helped to raise $60,000 earlier this year but Casey Johnson said the family were down to their last $6000.
They have updated the page and hope the public can help get them through the busy festive season to the New Year when more fundraising events can be planned.
In the meantime they said it would be a quiet Christmas for the family, including older brother Blake, 7.
