Caught in a solemn moment during the celebration of a life and launch of Esther-Jordan Muriwai's Bronchiectasis Foundation are Joe Clark, Camron Muriwai with Justice Muriwai, and Father Peter McDermott from St Francis Xavier Catholic Church.
On the day that would have been Esther-Jordan Muriwai's 25th birthday many people whose lives she touched gathered for the launch of the Bronchiectasis Foundation she started.
Yesterday Ms Muriwai's family, friends, health professionals, dignitaries and the Governor General, Lieutenant General Sir Jerry Mateparae acknowledged her courage and determination.
Ms
Muriwai did not live long enough to see her foundation's launch, losing her 14-year battle with the crippling respiratory disease on June 5 last year. But she had pulled together those who would see her dream through, wrote the constitution herself, and teed up the Governor General to be its patron.
Ms Muriwai set up the Northland Bronchiectasis Support Group in 2013. In March 2014 she was presented with an Asthma Foundation Achievers' Award, for bravery. Sir Jerry presented that award at Government House in Wellington, in recognition of her pluck and her efforts to raise awareness about the disease that affects more children in New Zealand than it does in most other western countries.
Yesterday the Governor General recalled how, when he started to walk toward Ms Muriwai to present the award she waved him away, ordering him to "go, go! I'll come to you."
