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Home / Hawkes Bay Today

Hawke’s Bay: Jason Hooker’s family’s heartbreak as purpose of Givealittle funds shifts from treatment to buying his coffin

Michaela Gower
By Michaela Gower
Multimedia Journalist, Hawke's Bay Today·Hawkes Bay Today·
21 Nov, 2024 05:56 PM3 mins to read

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Calls for the government needs to tackle knife crime after a security guard was stabbed in the neck in Auckland's Newmarket.

Givealittle funds raised to support Hawke’s Bay man Jason Hooker’s cancer battle have been used to buy his coffin and make his final days comfortable in the light of news revealing treatment was no longer an option.

Jason’s partner Kylie Ashdown said he was unable to undergo treatment because of the huge increase in the size of bleeding tumours on his brain and the requirement to take a steroid.

The family was previously working to raise $100,000 in nine weeks to fund cancer treatment to prolong Jason’s life so he could witness his youngest son start school in two years.

Hooker has been battling Stage 4 Melanoma cancer since 2023, and around September 14 the family was down to Jason’s last chance, a non-funded drug called Ipilimumab taken in conjunction with Keytruda.

Jason Hooker and Kylie Ashdown were hopeful the Givealittle money could be used to extend his life, now it is to help him live comfortably.
Jason Hooker and Kylie Ashdown were hopeful the Givealittle money could be used to extend his life, now it is to help him live comfortably.
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The Givealittle managed to raise $29,917 in 11 weeks but the news that Jason’s condition had worsened meant the purpose of the money had also shifted.

“We were doing pretty well and we were on track for the non-funded stuff and then he started to get lost and didn’t know certain things.”

Ashdown said the change in his personality around September 19 when he couldn’t remember attending Race for Life in Auckland ultimately led to scans of his body and brain that revealed news the family had feared.

When she asked the doctors this time for his life expectancy she was told “there is nothing we can do”.

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“She used to give us six months or a year and I asked her and all she said was he is going to go quick.”

She said they were also informed that Jason would be prone to having seizures which has left her constantly on edge and aware of any telltale symptoms.

“You are waiting for that s*** so it’s really hard.”

“He looks good but he has lots of different stuff happening and it is waiting for something to come that you never wanted to come.”

Ashdown said now her youngest son understood that he needed to be gentle around his father and her son Mike, who battled and beat an aggressive brain and spine cancer called medulloblastoma, watched over his dad to ensure he was still breathing.

“He won’t sleep for 24 hours at times because he is watching his dad.”

Ashdown said she spent her days at their Havelock North home ensuring Jason had access to whatever he required to live comfortably.

“We have tried a few medicinal things and spending quite a lot of money on the non-funded stuff like oils, so he is not in pain and relying on medication.”

Michaela Gower joined Hawke’s Bay Today in 2023 and is based out of the Hastings newsroom. She covers Dannevirke and Hawke’s Bay news and loves sharing stories about farming and rural communities.


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