Kylee knows exactly what it's like to face accessibility barriers.
Ten years ago she was diagnosed with Ehlers-Danlos Syndrome (EDS), a genetic connective-tissue disorder.
EDS causes a person's collagen — the protein that binds cells together — to lose its elasticity, which leads to repeated dislocations, broken bones, and joint, skin and ligament problems.
Treatment ranges from medicines to treat the side effects of EDS such as low blood pressure and soft tissue injuries, to surgery, physiotherapy and pain medication.
Kylee uses a wheelchair and is tube-fed, but that hasn't slowed her quest to raise awareness about EDS and accessibility.
Festival One gates open tomorrow (Friday) at 10am and close on Monday, January 28 at midday. Photo / Supplied
The Soul Lounge is in its third year and Kylee has been involved from the start.
This year's marquee is near toilets and showers, which can be accessed by a concrete footpath.
It has a powered facility for medical devices, a space to charge powered wheelchairs and a small fridge to store goods for medical purposes.
Fans, beanbags and couches will make for a cool and quiet space for people with disabilities and their families and friends.
A raised platform for wheelchairs at one of the stages, One Arena, will also be available for use.
Festival One is a three-day Christian music event at Mystery Creek, Hamilton. Photo / Supplied
Next year, Kylee hopes to have a fully accessibly adult changing table at the marquee.
Volunteers will be on hand to assist people, help them to explore the festival and provide accessibility information.
Kylee has also thought carefully about transport.
An accessible car will be shuttling people from the carpark to The Soul Lounge and back. There are also parking options available for those with disability passes.
