Northern Advocate
  • Northern Advocate home
  • Latest news
  • Business
  • Opinion
  • Lifestyle
  • Sport
  • Property
  • Video
  • Death notices
  • Classifieds

Subscriptions

  • Herald Premium
  • Viva Premium
  • The Listener
  • BusinessDesk

Sections

  • Latest news
  • On The Up
  • Business
  • Opinion
  • Lifestyle
  • Rural
    • All Rural
    • Dairy farming
    • Sheep & beef farming
    • Horticulture
    • Animal health
    • Rural business
    • Rural life
    • Rural technology
  • Sport
  • Property
    • All Property
    • Residential property listings

Locations

  • Far North
  • Kaitaia
  • Kaikohe
  • Bay of Islands
  • Whangārei
  • Kaipara
  • Mangawhai
  • Dargaville

Media

  • Video
  • Photo galleries
  • Today's Paper - E-Editions
  • Photo sales
  • Classifieds

Weather

  • Kaitaia
  • Whangārei
  • Dargaville

NZME Network

  • Advertise with NZME
  • OneRoof
  • Driven Car Guide
  • BusinessDesk
  • Newstalk ZB
  • Sunlive
  • ZM
  • The Hits
  • Coast
  • Radio Hauraki
  • The Alternative Commentary Collective
  • Gold
  • Flava
  • iHeart Radio
  • Hokonui
  • Radio Wanaka
  • iHeartCountry New Zealand
  • Restaurant Hub
  • NZME Events

SubscribeSign In

Advertisement
Advertise with NZME.
Home / Northern Advocate

Jonny Wilkinson: Disability awareness a hard yakka

Northern Advocate
18 May, 2017 02:12 AM4 mins to read

Subscribe to listen

Access to Herald Premium articles require a Premium subscription. Subscribe now to listen.
Already a subscriber?  Sign in here

Listening to articles is free for open-access content—explore other articles or learn more about text-to-speech.
‌
Save

    Share this article

How many people does it take to change a ... writer's block? Photo / Getty Images

How many people does it take to change a ... writer's block? Photo / Getty Images

Writer's block. Maybe four times a year I am impaired by it.

Given that I write a column every other week that's not too bad but today I needed inspiration. So, I shuffled round the news looking for some.

I soon found a relevant headline: "UN urges North Korea to improve disability awareness".

It's about a United Nations expert expounding on the rights of people with disabilities to be allowed access into North Korea.

While personally I wouldn't be craving such access, it is a laudable campaign.

Advertisement
Advertise with NZME.
Advertisement
Advertise with NZME.

I think she or he has his work cut out, though. Hard yakka, when you consider that earlier in the week two Aussies were in the news for simply going to North Korea to get a hipster haircut.

Their goal was to dispel the apparent myth that haircuts are policed in North Korea. Judging by the esteemed North Korean leader's rather interesting haircut, it probably wasn't much of a challenge.

Nah, think I'll stay well away from that scene.

Advertisement
Advertise with NZME.

I turned to social media to ask for suggestions. I got: "How the paper carrier keeps the paper dry", rather mysteriously from Sharon.

"Well, I give up, how does the paper carrier keep the paper dry? Is this a joke or euphemism?" I responded, waiting for the punch line.

In the meantime Karen suggested I write about the stupid rules around qualifying for equipment or modifications to make living in your house possible. Grrrr.

I rang Karen. I know her. Her son has Down syndrome and a heart condition that was misdiagnosed in his infancy which resulted in a very low oxygen saturation, meaning his bones are deteriorating rapidly.

"So what problems are you having?" I asked.

"Oh, you know, the same old b***s***" she said. "Daniel's condition is so changeable sometimes he uses a wheelchair, sometimes he doesn't.

``We applied for a housing modification so his wheelchair could fit in the bathroom and the occupational therapist gave us a stool!
"It's the same old story - if you're funded by the Ministry of Health life's a hassle. If we were funded by ACC, life would be bloody roses."

I talked with Karen for a while and suggested some alternative funding sources.

She listened politely and her response was one that I, and many others with disabilities, can relate to.

"I don't know," she sighed. "We're a bit funny like that, we don't like asking for things, we don't like grovelling."

Advertisement
Advertise with NZME.

Fair call.

Simon suggested I write about Third World attitudes around disability framed by my own overseas experience.

Well, yes I did have small crowds of people following me, helpfully jeering and throwing rubbish at me, while I visited the interior of Indonesia some mumble-mumble years ago.

But when I look back, it was nothing compared with the conditions and societal treatment most of the local disabled people endured.

Sharon answered me about keeping the paper dry: "Putting a tarpaulin over it or wrapping in plastic."

So obvious, yet possibly too challenging for my imaginative powers to base an entire column around.

Advertisement
Advertise with NZME.

Trish reminded me it was Sign Language Awareness Week. Sign Language is a vehicle of deaf culture, a language in its own right and New Zealand's third official language.

Even though we've been working with the deaf community over the last 10 years, I have to admit I'm still learning fundamental things about NZSL.

In a taster class yesterday I learned, for instance, that in NZSL the subject came first and the adjective came afterwards, similar to te reo Maori.

I also learned sign language can be ambidextrous, which is good for me. Being very left-handed, I wouldn't have a hope in hell of signing right-handed.

So these are my staccato-like snapshots of the disabled community as it rolled out today.

Thanks to all who helped out a blocked fellow member with your ideas.

Advertisement
Advertise with NZME.

You've replenished and revived me with your input and reminded me of our range of causes and characteristics.

Harsh, historic, stoic, literal, dry (the paper!), and most of all resilient - we just keep on rockin'. Cheers team.

Jonny Wilkinson is the CEO of Tiaho Trust - Disability A Matter of Perception, a Whangarei-based disability advocacy organisation.

Save

    Share this article

Latest from Northern Advocate

Northern Advocate

Two charged with neglect 10 years after 4yo's death in Kaikohe

Northern Advocate

Major water leak forces school closure for urgent repairs

Northern Advocate

Saving lives: Mobile AED startup named best emerging business


Sponsored

Solar bat monitors uncover secrets of Auckland’s night sky

Advertisement
Advertise with NZME.

Latest from Northern Advocate

Two charged with neglect 10 years after 4yo's death in Kaikohe
Northern Advocate

Two charged with neglect 10 years after 4yo's death in Kaikohe

Police have continued their investigation since Alestra Kepa-Hati's death in 2015.

17 Jul 02:17 AM
Major water leak forces school closure for urgent repairs
Northern Advocate

Major water leak forces school closure for urgent repairs

17 Jul 01:26 AM
Saving lives: Mobile AED startup named best emerging business
Northern Advocate

Saving lives: Mobile AED startup named best emerging business

16 Jul 11:00 PM


Solar bat monitors uncover secrets of Auckland’s night sky
Sponsored

Solar bat monitors uncover secrets of Auckland’s night sky

06 Jul 09:47 PM
NZ Herald
  • About NZ Herald
  • Meet the journalists
  • Newsletters
  • Classifieds
  • Help & support
  • Contact us
  • House rules
  • Privacy Policy
  • Terms of use
  • Competition terms & conditions
  • Our use of AI
Subscriber Services
  • The Northern Advocate e-edition
  • Manage your print subscription
  • Manage your digital subscription
  • Subscribe to Herald Premium
  • Subscribe to the Northern Advocate
  • Gift a subscription
  • Subscriber FAQs
  • Subscription terms & conditions
  • Promotions and subscriber benefits
NZME Network
  • The Northern Advocate
  • The New Zealand Herald
  • The Northland Age
  • Waikato Herald
  • Bay of Plenty Times
  • Rotorua Daily Post
  • Hawke's Bay Today
  • Whanganui Chronicle
  • Viva
  • NZ Listener
  • Newstalk ZB
  • BusinessDesk
  • OneRoof
  • Driven Car Guide
  • iHeart Radio
  • Restaurant Hub
NZME
  • About NZME
  • NZME careers
  • Advertise with NZME
  • Digital self-service advertising
  • Book your classified ad
  • Photo sales
  • © Copyright 2025 NZME Publishing Limited
TOP