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Home / Bay of Plenty Times

She just wants to be a normal mum

By Rebecca Savory
Bay of Plenty Times·
19 Apr, 2015 07:40 PM4 mins to read

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Frankie Egglestone, 27, wishes she was well enough to care for her daughter full time.

Frankie Egglestone, 27, wishes she was well enough to care for her daughter full time.

Frankie Egglestone has not even celebrated her 28th birthday but unless she gets a new kidney soon she may not celebrate many more.

The Brookfield mother is one of 2370 New Zealanders who rely on renal dialysis because they have end-stage kidney disease, or kidney failure.

She is one of 20 Bay of Plenty people on the waiting list for a transplant, yet only six transplants were performed on Bay people last year - three from live donors and three from deceased donors.

Bridgette Irwin, 44, has been in kidney failure for 10 years and living on dialysis for about eight of those. Photo / Supplied
Bridgette Irwin, 44, has been in kidney failure for 10 years and living on dialysis for about eight of those. Photo / Supplied

People waiting for a kidney from a deceased donor could wait anything from a few weeks to seven or more years, the Kidney Society NZ said.

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"There are more people waiting for organs than there are organs available for transplantation. Some people will wait a number of months for a transplant while others will have to wait a number of years for an organ to become available. Sadly, some of these people will die waiting," Organ Donation NZ said.

Live Kidney Donation Aotearoa said the average life expectancy of a person on dialysis was four to five years.

Miss Egglestone said dialysis was only a short-term solution.

"I've known people to be on dialysis for eight to 10 years but they are very unhealthy people."

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Miss Egglestone had so far had nine potential live donors tested and none had matched.

She was born with only one kidney which failed when she was 5 years old. She received her mother's kidney at age 6 which lasted 19 years, a long life for a kidney.

Her body built up a large amount of antibodies from the first transplant so now kept rejecting potential kidneys.

She did not think her chances of getting a new kidney were great because she was applying as a second-time recipient and her body kept rejecting offers.

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"All I want is to be a normal healthy mother for my daughter," she said.

In the hospital bed opposite Miss Egglestone, lies Bayfair woman Bridgette Irwin, 44, who has been in kidney failure for 10 years and living on dialysis for about eight of those.

Both women are currently in Waikato Hospital for a six- to eight-week stint, away from their homes and their children.

Ms Irwin's kidney failure developed from an auto-immune problem she had most of her life..

All I want is to be a normal healthy mother for my daughter.

Frankie Egglestone

Before her kidneys failed, Ms Irwin was a caregiver, a bureau nurse, teacher aid and a child carer.

"Now I'm the one who needs looking after," she said.

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To be accepted on the transplant waiting list she needed optimum health which her auto-immune condition had so far prevented.

The mother of six cannot maintain a part-time job as she is in Tauranga Hospital three days a week for her dialysis treatment and is often low in energy.

"It's been terrible," she told the Bay of Plenty Times.

"Before this I was riding horses, playing tennis, surfing, I was really active. So it's a complete lifestyle change."

Her children had watched her go in and out of hospital and she just wanted to be "a real mum who could do everything other mums do".

"They openly talk about what they will do if I die," she said.

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A woman had contacted her through facebook wanting to donate her kidney but the Kidney Society NZ said it could take up to a year to have all the tests done that were necessary to make sure the donor kidney was a good match, and that the transplant operation was safe for both the donor and the recipient.

Both women hope that by sharing their stories there will be an increase in awareness of kidney disease and kidney failure.

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