"Don (James' father) is going to swim from Motiti to Maketu, it's 12.7km swim, on January 31."
He has done the swim twice, 10 years ago after a friend died and about 20 years ago.
Mrs Reid has been blown away by the support from the local community.
"It's very touching and emotional. I'm lost for words what mates and mates of mates are doing for us. It's very cool, hopefully other parents out there who want to do the same thing for their children know they can hearing about our story. We will do anything we can to help James."
Mrs Reid said the operation could not come soon enough.
"The sooner the better. Obviously with the growth spurts we need to try and get him the procedures as soon a possible."
The family has raised $8760 so far. To help get James to America please head to: givealittle.co.nz/cause/TeamJames