In June they went to their GP where it was diagnosed as a pyogenic granuloma and they were referred to the paediatric department at Tauranga Hospital. Pyogenic granulomas are benign raised tumours on the skin or mouth that bleed easily.
After an initial letter, the family heard nothing for nearly three months.
Frustrated, Gus contacted the hospital and was told it could be another four to eight months for treatment because of the way the hospital prioritises cases.
”That’s when I blew my top. By that time, it would have been a year that we’ve been waiting for this.
”For a teenager to go through something like that, it’s like they [the hospital] almost don’t want to acknowledge the emotional trauma they put these kids through.
”They only look at the physical aspects of it. When somebody is mentally disadvantaged because of a decision that they make, I see that as a very severe fault, almost like an injustice in the system.”
He contacted the complaints department of the hospital and others around the country as well as leaving messages on politicians’ Facebook pages.
Gus then received an appointment with a specialist contracted by the hospital last week.
The doctor confirmed the wait could be up to eight months but offered their services privately at a reduced cost, he said.
Gus said his stepson’s pyogenic granuloma is in its small state in this photo.
The family would have the tumour removed privately so his stepson doesn’t “suffer any more”, acknowledging they are in a “privileged position” to do so.
Asked how he felt having to go to these lengths to be seen and treated, Gus replied: “You feel like a second-hand citizen.”
”I do acknowledge that these people [doctors] have it difficult, because they work in a system that is broken.
”Those circumstances forced me to fight the same system that thousands of New Zealanders fight each and every week.”
Te Whatu Ora Bay of Plenty acting group director of operations Sarah Mitchell said they were unable to comment on individual cases.
Referrals for pyogenic granulomas are made by a GP, and if accepted the patient will be seen for First Specialist Assessment (FSA), she said.
”If the outcome of FSA is a referral for treatment and this is accepted, patients are prioritised and those with the highest clinical need will be seen first.”
The target is for planned care procedures to happen within four months of referral for treatment, Mitchell said.
”Some services are experiencing high demand and high patient acuity, and have been impacted on by workforce shortages.
”Whilst we are working to address workforce shortages, this together with the increased demand on services means some patients who are less urgent are waiting longer than we would like.
”Patients are actively monitored and waitlists updated to reflect any change in their condition.”
They are also advised to see their GP if their condition worsens, Mitchell said.
”Te Whatu Ora recognises the potential for impact on mental health for people with this condition and advises families with regard to support available through their GP and mental health services.”
Youthline: Call 0800 376 633 or text 234What’s Up: Call 0800 942 8787 (11am to 11pm) or webchat (11am to 10.30pm)The Lowdown: Text 5626 or webchatFor more information and support, talk to your local doctor, hauora, community mental health team, or counselling service.
- Public Interest Journalism funded through NZ on Air
