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Ollie Schimanski, 6, was diagnosed with Sanfilippo last year.


It is known as "childhood dementia" and the brain progressively gets damaged.

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Sam Ruthe breaks NZ records in LA
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Sam Ruthe breaks NZ records in LA

The 16-year-old Tauranga runner lowered his own national U17 and U18 1500m records at the Sound Running Sunset Tour in Los Angeles. Video / Athletics NZ