Disease easier to bear with Nait

By Ilona Hanne

Stratford toddler Hayley Ryan is hosting an international visitor this month, with her parents Melitta Marshall-Smith and Aaron Ryan.

Hayley's visitor is a very important bear called Nait, who is originally from England and has made his way to Hayley's house via Australia and Indonesia.

Nait is a cute and cuddly friend for the 18-month-old girl and a bear with a mission: to raise awareness about a blood disorder called Neonatal Alloimmune Thrombocytopenia (NAIT).

Melitta explains that NAIT is a condition in which the parents' blood platelets are incompatible, causing the mother's body to create an antibody that attacks the unborn child's platelets. As platelets are the part of our blood which help with clotting, this means that the baby is at risk of bleeding in the brain, stomach or other parts of the body.

Melitta and Aaron are now very knowledgeable about the disease, though they had never heard of it before Hayley was born. Melitta says that, when Hayley was born at 42 weeks, she started to bruise really easily and five hours after she was born her pulse didn't show up on the machine used to check it. As a result, the newborn was rushed to the neonatal unit at Taranaki Base Hospital where she was diagnosed and treated for the potentially fatal condition.

Hayley's platelet count was originally just seven. The norm for newborns is around 150. Hayley therefore needed three separate platelet transfusions before she could go home. She spent two weeks in the hospital.

Melitta describes Hayley as a miracle baby. That's what they all called her in the hospital because she has recovered so well and has no long-term effects from it.

Once Hayley was home, Melitta started looking into the condition and educating herself about it. She came across a group on Facebook and its website www.naitbabies.org. She describes the group as a wonderful resource of lovely ladies who are just so helpful and giving.

The group put her in touch with other families in New Zealand. There are currently just eight families that we know of in New Zealand, Melitta says. The rarity of the disease had made it hard for her to find much support before she found the online group.

It was through this group that Nait the bear was conceived. He and his sister Naitalie have been sent off around the world as cuddly ambassadors for the disease. As they visit each family, they are taken on outings.

We are going to our music group next week and will definitely take him up the mountain, says Melitta. Nait will then collect a passport stamp at the local post shop and be sent on to the next family. Nait will leave Hayley later this month and make his way down to Invercargill.

While Hayley is now a happy and healthy toddler, Ryan and Melitta know that any future pregnancy will come with the certainty that the baby will have NAIT. This is because Melitta is in what medical professionals term the 100 per cent group.

Melitta says hosting Nait is a great way to spread the word about Hayley's condition, as well as reminding people of the importance of donating blood.

I am so thankful for all the people in the world who do donate blood, as without them, Hayley's life could have been so different, or she may not have even survived.

For further information, please contact www.naitbabies.org and don't forget to donate blood when you can.

- Stratford Press

Get the news delivered straight to your inbox

Receive the day’s news, sport and entertainment in our daily email newsletter


© Copyright 2017, NZME. Publishing Limited

Assembled by: (static) on production bpcf05 at 23 May 2017 23:17:05 Processing Time: 331ms