Rotorua 3-year-old Elliott Crimp, who is recovering after being diagnosed with meningococcal C, has been transferred from the Starship hospital to Middlemore Hospital for plastic surgery.
He has had all the toes on his left foot and half of the right foot, including all the toes, amputated and is still undergoing surgery each week.
He is expected to be in Middlemore Hospital for another three to six months.
Late in September, Elliott was taken to Rotorua Hospital after vomiting through the night. After he arrived in hospital doctors found his body was covered with a rash. He was taken to the intensive care unit before being put in an induced coma and flown to the Starship. He remained in an induced coma for several days while fluids were pumped into his body to improve his blood supply.
Doctors told Elliott's mother, Kushla Crimp, her son had a deadly disease which was super-fast-acting and she was lucky she brought him to hospital when she did.
Late last month, Elliott was transferred to Middlemore Hospital for surgery and this week had reconstructive work done to his knees. He has had the toes on his left foot and about half of the other foot, including all the toes, amputated and is expected to lose parts of a few fingers.
Mrs Crimp said she had still to tell her son what had happened to his feet but was waiting until the bandages came off.
She was staying in Elliott's hospital room along with his two older brothers, Ian, 6, and Angus, 5.
"He is at his worst during the night. Between 2am and 4am is really bad ... He's in a lot more pain now than even before."
Meanwhile, a fundraiser has been set up by Melanie Richardson and Ali Bruns, and Heidi Blackmore and Chad Hoggard have set up a bank account.
Mr Hoggard said the account had raised $3263 and was still open.
Mrs Bruns said they had sent up to two care packages to the family and she was planning to organise a Christmas parcel for which people could donate toys or non-perishable food. People can donate to the Elliott Duncan Crimp Fund at BNZ. The bank account number is 02-0412-0109440-66.
Anyone wanting to donate toys or non-perishable food can contact Mrs Bruns, phone (07) 345 6341.
Money has also been collected at Rotorua's Aquatic Centre.