Mostyn takes big step closer to home

By Kristin Edge


Two-year-old Mostyn Baigent is making small but positive steps towards getting back on his feet.

A cast was taken off his right leg this week and he is now in Whangarei Hospital after six months at Starship in Auckland.

It means his mum and dad, Paula and Aaron Baigent, get to have him closer to home and his three brothers get to visit after school.

The Whangarei toddler suffers from a movement disorder known as anti-NMDA (N-methyl D-aspartate) receptor encephalitis.

It's a rare condition identified only in 2007, previously often misdiagnosed as a psychiatric illness.

Encephalitis is inflammation of the brain caused either by an infection or through the immune system attacking the brain and it causes Mostyn to thrash about with his arms and legs.

The family are now in the process of getting their house renovated ready for when Mostyn can make the final move back home.

Mrs Baigent said Mostyn's condition meant he was susceptible to coughs and colds. Their home was 40 years old and had very little insulation and so major alterations were needed to move him into his parent's larger room.

"He has no B cells and half his immune system is missing."

When he moves home he will need a number of medical machines with him and room for a carer to stay over night.

Financially the family have struggled as they have taken leave from their jobs to be with Mostyn in hospital. Apart from a $45 a week disability allowance, they didn't qualify for financial aid.

Their mortgage protection insurance was invalid as Mostyn was under 3.

So the Whangarei community has rallied and a dinner featuring All Black Richard Kahui will help raise money to allow the family to make the necessary home alterations and insulation.

Mrs Baigent said her coffee group had been supportive and was the driving force between the dinner on July 5.

The family had been overwhelmed by the support shown by local businesses which donated items for auction.

"At first we were kind of embarrassed about it but now we realise just how supportive everyone is."

One of the dinner organisers Marcela Thompson said some of the items for auction included a weekend package in Queenstown.

Mostyn's charity dinner is on July 5 at Horahora Rugby clubrooms, at 6pm. For tickets email Marcela on almostyn2013@gmail.com, or phone 0212876551/ 094372842.

- NORTHERN ADVOCATE

© Copyright 2014, APN New Zealand Limited

Assembled by: (static) on red akl_n2 at 02 Aug 2014 03:53:27 Processing Time: 691ms